Australian Bleeding Disorders Registry Annual Report

The Australian Bleeding Disorders Registry (ABDR) is a clinical registry for patients in Australia with bleeding disorders. It is used daily by clinicians in all Australian Haemophilia Treatment Centres (HTCs) to assist in managing the treatment of people with bleeding disorders and to gain a better understanding of the incidence and prevalence of bleeding disorders. Patients also contribute data to ABDR through the MyABDR app, which allows patients to record home treatments and bleeds.

The Annual Reports summarise patient and product data from ABDR and other National Blood Authority (NBA) sources to provide a high-level overview of who has bleeding disorders, how they are treated and what products are used. This report may be of interest to clinicians providing care to patients, patient community organisations and government organisations.